Posts Tagged organization
The Foundation Fighting Blindness
Posted by admin in Alexander, Disabilities, Health on December 13th, 2009
Posted by Moishe Alexander
Purpose of the Patient Registry:
Foundation Fighting Blindness-Canada and CIBC have awarded Dr. Héon a grant to develop a National (Canada) Children’s Vision Research Registry, which is a medical information database that will capture patients affected with retinal dystrophies.
The purpose of capturing these patients is to better understand the natural history of retinal dystrophies, standardize clinical assessment, and most importantly identify patients that could be eligible for clinical trials and/or other therapeutic opportunities that may become available in the near future.
This registry has the potential of expanding into a multi-centered project, but for now it will only involve patients at the Hospital for Sick Children (SickKids).
Description of the Research:
The FFB/CIBC Children’s Vision Research Registry is an internet-based medical registry for retinal dystrophies. Retinal dystrophies are a group of genetic eye disorders that affect the retina of the eye. The retina is an important layer at the back of the eye, which picks up light and sends images to the brain. People who have a retinal dystrophy cannot see as well as other people because their retina is not working properly.
You are asked to be part of The FFB/CIBC Children’s Vision Research Registry. This medical database will allow scientists/physicians access to large amount of medical information that will allow them to better understand the natural history of retinal eye disorders such as the one in your family. This project will ultimately provide you and other patients, with retinal eye disorders, the opportunity to be studied by other doctors, which will allow them to determine you eligibility for clinical trials and/or new treatments that may become available in the near future.
No immediate benefit from participating in this study is expected. However, when clinical trials and other therapies become available in the future, your eligibility for treatment will be determined and you will be managed following the standard of care protocols in place at SickKids. If we also find that you are eligible for any new Foundation Fighting Blindness and SickKids Research Ethics Board approved research projects that develop from the FFB/CIBC Children’s Vision Research Registry you will be notified.
You will be informed of any changes made to the study or new information that might affect your willingness to continue to participate in the research.
Vaad Harabbanim
Posted by admin in Aid Services, Alexander, HaGaon, Rabbi Efraim Levit, Torah on September 23rd, 2009
The Vaad Harabbanim has long been considered the symbol of charity for residents of Israel, and there is almost no one who hasn’t heard about its wonderful work, whether in establishing special funds for widows and orphans or rehabilitating broken families or helping children in distress and the desperately ill. It is hard to imagine how life in Israel would be without the existence of this most worthy organization.
Moishe Alexander was endorsed this charity and asks for the help of the community to help fund the Vaad Harabbanim
What is The Vaad Harabbanim?
The Vaad Harabbanim is an organization that was founded by Gedolei Hador, shlita, in order to supervise all charitable matters in Israel. Until its inception, there was no real control or organization to charitable donations and causes, with the very number of charitable funds being overwhelming, as well as problems like knowing if one’s donation really reached its goal, how monies were spent, reviews and audits of activities, and more.
As the economic situation worsened, it became even harder to ensure that charitable funds could be properly monitored, especially for large families in the Chareidi sector.
Understanding the scope of the problem, as well as the large number of unsupervised charitable organizations and the growing lack of trust among donors regarding their generosity’s destination, it was decided to establish a single, central organization that would be directed, operated, supervised and audited by dedicated and honest Rabbinical leaders. Each request for help would be carefully examined, criteria would be set, and every case would be followed up and reviewed to ensure honesty, transparency and that a person’s hard-earned donation reached its destination in full.
Thanks to its wide acceptance of the entire Chareidi world, the Vaad was able to establish a much wider donor base and therefore meet many more needs of an ever increasing poor and economically underprivileged population.
And so it was, the Vaad was established, rapidly becoming the largest and most central charity fund in Israel.
The Wheel of Fortune and Salvation
But the results surprised even the founders. Within a very short time, the Vaad’s reputation preceded it, and donations increased ten-fold, with the more veteran Gabbaim saying that the Israel before the founding of the Vaad is totally different than the Israel after the organization’s establishment.
The Vaad still serves as Israel’s largest charity fund, and has become the wheel of fortune and salvation for tens of thousands of tragic cases annually. The Vaad has helped countless widows, orphans, families and individuals overcome abject poverty, broken lives, broken families and dealing with fatal and near-fatal illness. In fact, the Vaad is so comprehensive and broad in its clientele base and so honest and efficient in its distribution of funds, that the Posek Hador Harav Hagaon S. Wozner, shlita, has said: “The Vaad Harabbainim is the very essence of charity in its fullest sense, unlike anything else in history.”
Whom to Give?
Naturally, some of the most difficult and tragic cases come to the Vaad for help, due to its size and scope. Even starving children are not an uncommon sight in the Vaad offices.
And it is certainly no pleasure when the Gabbaim enter a home to investigate a particular request and are greeted with peeling walls, disconnected electricity and phone, worn-out mattresses on the floor, and filthy children dressed in rags, not to mention empty cupboards and refrigerators or a father who works until late leaving a sickly and exhausted wife to cope with children and all the problems.
The only address for such cases is the Vaad, but the activities don’t stop there. Seeing its role as being the largest and most centralized charity fund, the Vaad also handles “regular” needs, like making sure a child receives proper dental care, psychological counseling and the like, which can be no less important than feeding a hungry child.
ICRF History
Posted by admin in Aid Services, Environmental, Health, Hockey, Israel, School, Torah, Uncategorized, Youth, family on July 9th, 2009
The Israel Cancer Research Fund (ICRF) supports groundbreaking cancer research by outstanding scientists in Israel. It is a voluntary charitable organization funded exclusively by private donations. Israeli researchers have been at the forefront of many of this decade’s most exciting developments in cancer research.
ICRF acts like the venture capital bank of cancer funding in Israel. Unlike many of the enormous government and private “cancer establishment” funding institutions, ICRF is open to imaginative new approaches and will often take a risk on new ideas. Research grants are awarded based strictly on merit – they do not favour any individual, institution or scientific point of view. The grant review process is rigorous, ensuring that only the most promising cancer research is funded. ICRF’s Scientific Review Panel is composed of more than 30 leading cancer researchers from Canada and the United States.
ICRF was founded in 1975 by a group of Canadian and American researchers, oncologists and lay people who were committed to the growth and development of Israel and to fighting cancer. They realized that a unique confluence of circumstance had positioned Israel to excel at cancer research:
Superb scientists: Israel has the world’s highest per capita concentration of scientists and physicians. The only thing the country needs more of is money to properly fund research.
Cost-effective research: the cost of conducting a research project in Israel is
30 per cent less than that of running the same project in Canada and the United States.
Well-equipped research network: Israel has a network of well-equipped laboratories, sophisticated hospitals and universities. Monies contributed go directly to advancing knowledge, not on constructing buildings or paying administrative costs.
Unified health care system: all Israelis belong to a national medical program, so record keeping and bio-statistical data collection are relatively simple.
Ethnic diversity: the Israeli population comprises of ethnic groups from many countries, making the nation itself a superb “laboratory” in which to study the role of environmental and cultural factors in the development of cancer.
http://www.icrfbuzz.org/web/index.php?option=com_content&view=article&id=7:about-icrf&catid=6:about-icrf&Itemid=8
reviewed by Moishe Alexander, CFC Canadian funding corp CEO